My Fabry Disease

A Decade in Review: Advancements in Fabry Disease Treatments Another year has flown by and Fabry Awareness Month has arrived.

In part one of this blog, I outlined some of the key issues affecting individuals with a rare condition and employment. I also outlined some

Rare disease could touch any one of us, or a member of our family, at any point in time. It’s in our own interests to do something positive

April is Fabry Awareness Month. The purpose of the month is multi-faceted: it helps to raise awareness of the disease amongst the ...

Fabry Disease can affect the heart and there are specific cardiac issues that are red flags if you know what to look for. Upon...

Could it be Fabry? It took years for my symptoms to be finally recognised as Fabry Disease. By this time my